ILD患者资源
支持团体
Living With a Lung Disease Support 组 (美国肺脏协会)
Pulmonary Fibrosis Foundation Support 组
Resources for specific ILDs
Connective tissue disease-associated ILD
(dermatomyositis, polymyositis, mixed connective tissue disease, granulomatosis with polyangiitis, Sjӧgren's syndrome, scleroderma, sarcoidosis, rheumatoid arthritis, Raynaud's syndrome)
American Autoimmune Related Diseases Association
硬皮病的基础
Familial pulmonary fibrosis
全国犹太人健康
Christine Garcia, MD, PhD, Columbia University
Idiopathic pulmonary fibrosis (IPF)
Pulmonary Fibrosis Foundation
Lymphangioleiomyomatosis (LAM)
林嘉欣基金会
结节病
Foundation for 结节病 Research
UCSF 结节病 Research Program
药物治疗
Mayo Clinic Drugs and Supplements
MedlinePlus Drugs, Herbs and Supplements
Esbriet
Ofev
十大赌博靠谱网络平台 associated with ILD
Gastroesophageal reflux disease (GERD)
International Foundation for Functional Gastrointestinal Disorders
医疗在线:GERD
肺动脉高压
Pulmonary Hypertension - High Blood Pressure in the Heart-to-Lung System
Pulmonary Hypertension Association
睡眠和睡眠呼吸暂停
American Sleep Apnea Association
MedlinePlus:睡眠呼吸暂停
国家睡眠基金会
ILD symptoms and complications
焦虑和抑郁
免于恐惧的自由
UCSF Osher Center for Integrative Health
去适应作用
California Society for Pulmonary Rehabilitation
Dyspnea (shortness of breath)
Pulmonary Education and Research Foundation
Better Breathers Club Program (美国肺脏协会)
Hypoxemia and supplemental oxygen
Emphysema Foundation for Our Right to Survive (focuses on COPD but provides useful information on oxygen equipment, traveling with oxygen, etc.)
体重减轻或增加
以健康体重为目标, National Heart, Lung, and Blood Institute
慧俪轻体
General lung health information
美国肺脏协会
National Heart, Lung, and Blood Institute
National Library of Medicine
最新式的.com
照顾者支持
Resources for financial hardship
医疗补助计划National Rehabilitation Information Center
NeedyMeds
合作伙伴hip for Prescription Assistance
Social Security Administration: Disability Benefits
Social Security Administration: Employment Support Programs
Research studies and getting involved
临床试验.政府
Foundation for 结节病 Research
Pulmonary Fibrosis Foundation
Rare Diseases Clinical Research Network
硬皮病的基础
林嘉欣基金会
UCSF Interstitial Lung Disease Clinical Research
肺移植
American Society of Transplantation
UCSF Lung Transplant Program
United Network for Organ Sharing
预先护理计划
生命终结资源, AARP
National Hospice and Palliative Care Organization
Tool Kit for Health Care Advance Planning, American Bar Association
加州大学旧金山分校健康 medical specialists have reviewed this information. It is for educational purposes only and is not intended to replace the advice of your doctor or other health care provider. We encourage you to discuss any questions or concerns you may have with your provider.